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Parent to Parent Alexandra Santana Should you have any questions regarding this article, please follow the specific contact information provided.
Regional Coordinator: Alexandra Santana
Alexandra can be contacted at :
Regional web page: What characterizes me that I would like to make sure other people know about me and remember me by? A positive outlook on life and the desire to help other parents. Why is Parent to Parent important to you? I believe that Parent to Parent gives the opportunity to find someone that will listen and understand our feelings. What happens when a parent speaks with another parent and receives support from another parent? It makes a parent feel empowered and better about their journey ahead because it makes a parent understand that they are not alone. Did you contact Parent to Parent looking for support before you were a Regional Coordinator? I did not because I didn’t know about it when I started my journey with my son. However, it is wonderful that now I can help other parents. How does the opportunity to connect with other parents benefit families? It gives them information, it educates them and it gives a parent the opportunity to open up about their kid’s issues that they might not talk with someone else. What qualities do I look for when recruiting support parents? I am looking for someone that listens and is able to provide help and solutions. What kind of information, referrals, or community connections are families looking for? At this time of the year families are looking for camps, summer resources and organizations. Was there a time when someone went above and beyond all expectations to help you with your child? Yes, that person is my wonderful mother. She left her years of retirement and moved in with us to help us take care of my son. I am balanced today because of her and her out pouring of love and constant support. Have you ever had a bizarre or off the charts comment or statement made to you by someone regarding your child? Yes, my child’s first neurologist, he said “your child might never talk”. Today I have the pleasure to hear his voice everyday all the time and have wonderful conversations about horses.
August 2010
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September 2010 Contact Us
Phone: 1-800-395-3372 Upcoming DDPC Meetings September 2010: 9/23/10 - Executive Committee Meeting *Notice* Open Government and the New York State Developmental Disabilities Planning Council (DDPC). All DDPC meetings are held in Albany, NY unless otherwise noted. Under law, the New York State Developmental Disabilities Planning Council (DDPC) meetings and DDPC Standing Committee meetings are open meetings. If the public wants to attend, they can attend as observers. Participants may be asked to leave during breaks in the deliberations and when the meeting goes into executive session. If more information, please contact the DDPC directly.
People First Language The DDPC strictly adheres to and encourages the use of people first language. However you may note that in some articles/stories appearing in the E-Bulletin the language used is not always entirely people first. Articles submitted to the DDPC are taken verbatim from the source and are therefore not edited by the DDPC for correct people first language due to copyright restrictions. |
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